Sophie has a bump on her back that has been there for a few months. It has been checked by multiple doctors several times and none of them were concerned. However, the pediatrician decided they should have a surgeon look at it and that happened last week. He ordered an MRI but assured us that he was almost 100% sure that it was just extra fascia...connective tissue and no big deal. Sophie underwent an MRI on Wednesday, June 20.
At that time they decided that it was likely a neuroblastoma and definitely a big deal. It is about the size of a baseball that goes through her spine and in the shape of a dumb bell. Sophie is truly unaffected by the tumor. It doesn't hurt her and she is eating, drinking, walking, peeing, pooping and sleeping just fine. She is her usual happy little self.
After conferring with the surgeon and an oncologist and figuring out a plan of action. Sophie was given the green light to go home and come back on Friday to have a few tests done.
A very strange thing about this is that about a month ago, our high school friends, Chad and Shelley Rakestraw's little girl Kamryn was diagnosed by these same doctors with the very same thing. There are typically about 600 cases of this per year in the US. To have 2 couples who are friends both have babies with this, is almost unheard of. So they will be taking this journey together with Kamryn leading the way. please visit Kamryn's site and show support for her too.
Whitney & Sophie and Shelley &Kamryn
We were so blessed to spend a few hours with Sophie the day before her first round of chemo so the girls could play before Sophie's immune system gets weaker.
As part of Sophie's fundraising team, the first thing we got were her bracelets! Next on the agenda...t-shirts, a Zumbathon, an auction, and a vendor sale! Sophie is loved and we KNOW she will beat this!
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